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TakeawaysFor the roughly 16 million Americans who depend on Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI), a new report reveals a troubling reality: a system that was already difficult to navigate became, for many, nearly impossible.
In March, the Disability Rights Education & Defense Fund (DREDF) and the American Association of People with Disabilities (AAPD) published a report detailing changes to the nation’s disability benefits system over the past year and highlighting the people most affected by those changes.
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The researchers interviewed 52 benefits specialists at 32 organizations that assist people seeking SSDI and SSI benefits. These professionals work with the Social Security Administration (SSA) on behalf of vulnerable clients every day.
In 2025, the SSA underwent a series of administrative, staffing, and policy changes including:
By November 2025, SSA had lost about 11 percent of its workforce, with staff reductions disproportionately affecting some field offices and rural areas. One paralegal in the Kansas City region said her local field office lost multiple employees to voluntary early retirement incentives and those employees weren’t replaced. The field office collectively lost around 120 years of experience.
The researchers found that these SSA process and policy changes created significant barriers for people applying for and attempting to maintain disability benefits. The changes also hampered the efforts of specialists who help them.
The report highlights seven interconnected themes that describe how accessing disability benefits changed in 2025.
Respondents who had worked in the disability benefits field for years consistently said the challenges they faced in 2025 felt new and unprecedented — not simply a continuation of historical problems. One respondent expressed, “It’s always been bad … it has, I think, gotten worse.”
Researchers identified five major areas where SSA policy changes created barriers:
Specialists said many clients could not reach the right department, were bounced between automated phone systems, or waited months for responses while their health declined. Many advocates described the process as “getting stuck in a loop.”
Respondents described cases where applicants who faced delays in obtaining benefits lost their housing or went without food assistance or medical care. One respondent working with the SSA on behalf of her sick client said she worried her client would die before the SSA staff approved her benefits.
According to the findings, administrative burdens in accessing disability benefits do not affect everyone the same way. The SSA’s push to move many services online hit some groups especially hard, including people who:
In other words, people who may most need disability benefits may also be the ones who face the most hurdles trying to get them.
Survey respondents said accountability has weakened at the SSA in part because regional offices were consolidated, greatly reducing advocates’ ability to resolve errors.
Survey respondents also said inconsistencies in how some SSA staff applied policies made it feel like the system was creating its own rules, undermining the predictability of benefits decisions.
Customer service issues at the SSA are also straining the organizations and advocates that serve SSDI and SSI claimants. As the system becomes harder to navigate, advocates say they are spending more time on routine tasks just to get basic information.
The report’s findings have real, daily-life consequences for the millions of Americans who rely on SSDI and SSI.
For new applicants, longer processing times and increased denial rates mean longer waits for benefits, during which people may fall into debt, lose housing, or delay needed medical care. Current beneficiaries face a more complicated process for updating documents, reporting life changes, or appealing decisions.
For those with cognitive, psychiatric, or communication disabilities, online-only services and automated phone systems can make the process especially difficult. People in rural areas or without reliable internet may struggle to reach field offices, some of which have reduced services or closed. And for immigrant families, fear and language barriers compound an already challenging system.
In the most severe cases documented by the report, delays and obstacles have caused people’s health to decline or left them homeless while waiting for benefits they were entitled to.
Despite these reported obstacles, there are steps you can take to protect yourself and improve your chances of success.
The researchers also provide recommendations for lawmakers and advocates. They call for more staffing at the SSA, consistent access to SSA services at field offices and by phone, and stronger protections to ensure vulnerable groups can still access benefits.
The report’s core message is simple: a system that was already hard to navigate has become even harder to use. As a result, people who need disability benefits are struggling to get the cash assistance they rely on to survive.
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